Adaptação transcultural e validade de conteúdo do instrumento de apoio à decisão “Making Choices: Feeding Options for Patients with Dementia” para a língua portuguesa do Brasil
Cross-cultural adaptation and content validity of the the patient decision aid “Making Choices: Feeding Options for Patients with Dementia” to Brazilian Portuguese language
Rodrigo D’Agostini Derech, Fabricio Souza Neves
Resumo
Objetivo: Realizar adaptação transcultural para o português brasileiro e verificar a validade de conteúdo de um instrumento de apoio à decisão originalmente produzido em língua inglesa (Making Choices: Feeding Options for Patients with Dementia), para auxiliar a escolha da via de alimentação de pacientes com disfagia por demência em estágio grave. Método: Foi realizada a adaptação transcultural com duas traduções independentes do instrumento original, síntese das traduções, duas retrotraduções independentes, nova síntese e pré-teste com 30 cuidadores para produção da versão final em língua portuguesa. A validação de conteúdo da versão final foi realizada com a análise por um comitê de 35 especialistas (médicos, fonoaudiólogos e enfermeiros brasileiros com experiência no manejo de pacientes com demência em estágio grave) e baseada no índice de validade de conteúdo e na concordância entre múltiplos avaliadores pelo kappa de Fleiss. Resultados: O nível de compreensão do instrumento pelos cuidadores foi adequado em todas as suas seções e seu conteúdo foi considerado válido pelo comitê de especialistas, de forma estatisticamente significativa. Conclusão: O instrumento produzido de apoio à decisão para a escolha da via de alimentação em pacientes com demência grave e disfagia, denominado “Fazendo escolhas: opções de alimentação para pacientes com demência” obteve evidências de equivalência transcultural e de validade de conteúdo para uso na população brasileira. Novos estudos são necessários para avaliar seus efeitos sobre o processo de tomada de decisão em nossa população.
Palavras-chave
Abstract
Purpose: Cross-cultural adaptation to Brazilian Portuguese and evaluation of content validity of a patient decision aid to help in choosing the feeding route for patients with severe dementia entitled “Making Choices: Feeding Options for Patients with Dementia”. Methods: The cross-cultural adaptation involved two independent translations, synthesis of translations, two independent back-translations, their synthesis, and pretest with 30 caregivers. Content validation was based on analyzes of 35 Brazilian specialists (physicians, speech-language therapists and nurses experienced in caring for patients with severe dementia) through measures of content validity index and concordance between multiple judges by Fleiss’ kappa. Results: The level of comprehension of the instrument by caregivers in the pretest was almost perfect. The specialists committee considered the contents of the instrument valid, in a statistically significant way. Conclusion: The patient decision aid in Brazilian Portuguese entitled “Fazendo escolhas: opções de alimentação para pacientes com demência” obtained evidence of cross-cultural equivalence and content validity for use in the Brazilian population. Further studies are needed to assess its effects on the decision-making process in our population
Keywords
Referências
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Submetido em:
19/02/2020
Aceito em:
17/06/2020
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